Research & Education Organizations

PA Lyme strives to provide access to current research and educational sources. We have compiled some sources that we believe are helpful in learning more about Lyme and tick-borne diseases.  Inclusion on this page does not indicate endorsement on the part of PA Lyme.

  • ILADS is a nonprofit, international, multi-disciplinary medical society dedicated to the diagnosis and appropriate treatment of Lyme and its associated diseases. ILADS promotes understanding of Lyme through research and education and strongly supports physicians and other health care professionals dedicated to advancing the standard of care for Lyme and its associated diseases. 

  • The Lyme Innovation Accelerator (LymeX), a partnership between the U.S. Department of Health and Human Services (HHS) and the Steven & Alexandra Cohen Foundation, is the world’s largest public-private partnership for Lyme disease. LymeX is working to identify, develop, and implement advancements in Lyme disease care — including next-generation diagnostics. 

    LymeX prioritizes improving diagnostic tools for Lyme disease, as current methods can be inaccurate, especially early in the infection. It encompasses the LymeX Diagnostics Prize, a multiphase competition aimed at developing more accurate and reliable Lyme disease diagnostics. 

  • LymeTV’s Tick JEDI™ Health Education Program offers schools, camps & youth organizations a free health education course about tick bite prevention.

Research & Education

  • Global Lyme Alliance is a 501(c)(3) whose mission is to cure Lyme and other tick-borne diseases through innovation research, awareness, and empowering the patient voice.  They have awarded over $20 million towards Lyme and tick-borne disease research. 

  • LymeDisease.org is a national Lyme education and awareness organization.  They provide a patient registry called MyLymeData, which provides patient information for research about the effects of Lyme disease. 

  • Project Lyme’s mission is to eradicate the epidemic of Lyme disease and other tick-borne illnesses by spreading awareness, providing educational resources, funding peer-reviewed research, and supporting advocacy for solutions to end the suffering. 

Patient Advocacy Groups

  • Clinical Trials Network dedicated to Lyme and other Tick-borne Diseases

    In recognition of a severe unmet need, the Steven & Alexandra Cohen Foundation’s grant to Columbia University established the first national Columbia Clinical Trials Network Coordinating Center (CTNCC) for Lyme and Other Tick-borne Diseases. Under the leadership of Dr. Brian Fallon, this Clinical Trials Coordinating Center aims to propel national research toward the goal of identifying more effective treatments for patients with Lyme and other tick-borne diseases. 

    Providing oversight to ensure that the highest-quality clinical trials are undertaken, the CTN Coordinating Center at Columbia will provide funding support for small pilot studies, assist investigators in protocol design and statistical research planning, establish and manage a national case registry, and create a data management system for multi-site clinical trials. The clinical trials network will be a powerful engine to drive large-scale clinical trials and potentially transformational early-stage research. 

    They also maintain a list of clinical trials that enroll patients.  Top researchers from premier academic institutions across the U.S. are conducting clinical trials that may lead to improved treatment outcomes–at no financial cost to participants. 

  • The Johns Hopkins Lyme Disease Research Center is a patient-based multidisciplinary center researching all manifestations of Lyme disease. 

    They strive to bridge the gaps in Lyme disease knowledge and translate research findings into improved patient care. 

University Research Centers

  • PA Tick Research Lab is a university-affiliated lab based in East Stroudsburg, Pennsylvania that is dedicated to providing fast, highly rated, laboratory-quality tick testing to people in high-risk areas for Lyme and other tick-borne diseases nationwide. 

    They offer tick testing that is 99.9% accurate and can detect the presence of 18 pathogens that cause diseases such as Lyme disease, Anaplasmosis, Babesia, Bartonella, Ehrlichiosis, Tularemia, B. miyamotoi, Southern Tick-Associated Rash illness, and Rocky Mountain Spotted fever. 

    Their website has information about the ticks found in Pennsylvania, and they maintain stats for the pathogens found in ticks in PA. 

  • TickEncounter is affiliated with the University of Rhode Island’s Department of Plant Sciences and Entomology and Cooperative Extension in the College of Environment and Life Sciences, and the New England Center of Excellence in Vector-borne Disease (NEWVEC).  They promote tick-bite protection and tickborne disease prevention by engaging, educating, and empowering people to take action. 

Tick Labs